I’ve been visiting this site for information and support ever since my younger sister’s AVM bleed 5 weeks ago. Im from Sydney, Australia. My sister is 28 years old and her bleed was “huge”. She had brain surgery within a couple of hours of the bleed and the entire avm was removed successfully. They didnt need to cut into any brain tissue which is a bonus i guess? She was kept in an induced coma for about 1 week. She has now been in her own coma for 4 weeks. She only started opening her eyes 5 days ago. The part that is concerning me is that she was starting to show some very weak response to command a week or so after being taken off sedation but a week later stopped. In saying that the neuros cant find any evidence of further injury or complications to have caused this. She has progressed in ways though. She is breathing 100% on her own and her eyes are opening and moving around. Her MRI had shown swollen ventricles and swelling in the back of her head around the cerrebellum and brain stem. Her ventricles are now a normal size but the brain swelling is still there.
I guess my questions to you all is, has anyone experienced “going backwards” in that way and how long does it take for swelling of the brain to go down?
Any help will be appreciated.