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AVM Survivors Network

Carlos 13 years old


#1

New vein like formation appeared today. We were asked to wait a year for an MRI. Just another day in the life of an AVM survivor.



#2

The good news is he is 13, healthy, and handsome, Ana. Thanks for the update. I ho0pe he continues to do well.


#3

Thanks Madere! It’s been a year since this picture - we just got back from laser/bleo 4 weeks ago, his eye swelled shut and now we see a vein throbbing in the cheek area. Very upset to see the AVM resurge so quickly after treatment. Looking back at these pics we can see the progression of his AVM - he looked so good here. Will keep posting periodic updates here it’s a great way to track our progress over time. It’s been 8 years now, still not AVM free. : (


#4

Hello Ana I know it’s been a long time since you were on here but I hope you come back on. I was off this site too bc my life with my son became my number one priority and I had no time for social media. I find it interesting that my name is Ana and my son is Carlos and he is 15 years old. I feel for you and I pray for both of you.
Talk to you soon I hope


#5

Hi Carlos, hope your feeling well, healing and getting strong, I have the same thing, showed up about 8 months ago, mines on the back right side of head,. Praying for you and your family, hang in there buddy, never, ever give up!!


#6

Pray for the kids. Hope he can get recovered very soon.