Hello, fellow fighters and survivors! I am here with a request for help from you.
I am assuming that most of you went to Google after obtaining the diagnosis of AVM for yourself or your loved ones, and frantically looked up information on the disorder, to find out what can be done, what should be done, what the future holds for you.

I want to help people who are going to be going through the same process we did, by making the information easier to find, as well as easier to understand.
I know how stressful and frustrating it was to have been thrust suddenly into this scary new diagnosis. And I remember how tiring it was to search for sources that I could actually understand.

Please read the 2nd part of the entry (the first part is about the 5K, so you can skip that), and leave a comment with your favorite informational websites, support communities, and any other resources you found useful, so I can compile them all into single website for new patients and their loved ones to access.

This is the entry to which I would like for you to comment on, if you have any helpful websites to share:

Thank you so much for your time and support! Wishing you all the best!

By the way, the 5K for Brain Injury Association of Maryland was a great success, and as I wrote about in the entry, my fundraising page raised $660!!! I am so blown away and thankful for everyone who has supported me in the past year and the half. I am so blessed to be surrounded by such phenomenal and magnanimous people...

326-5k.png (47.3 KB)

Hiro, here are some places you can start: (probably the website I have used most often)

Thank you so much! :smiley: