Hi Nea’s Mom,
My son is also 19. We found out about his AVM (the size of a golf ball) when he had a seizure last October. Luckily he has had no bleed and we are looking into embolization and craniotomy. We are flying to Arizona to meet with Dr. Spetzler in three weeks to discuss the plan so that Kyle can decide on moving ahead or waiting. How does a 19 year old, who is functioning well with no deficits, make the decision to have a risky surgery to prevent a bleed that could occur tomorrow or 30 years from now? I just can’t imagine.
I am glad that your daughter is recovering so well. I think the emotional recovery must be the hardest. I know what you mean when you say she may not be ready for this site yet. It took me a while to look at it without feeling panic.
I wish both you and daughter well.
You know, in some ways, Nea was lucky in that she was in no position to make a decision… her dad and I had to. I can only imagine how your son feels, having to make this decision.
Our children seem to have had similar experiences… headaches leading to “migraines” leading to a seizure and the discovery of the AVM.
I hope your son’s path turns out as well as Nea’s.
You and he will be in my thoughts. Please update when you can.