Brain AVM rebleed

Children heal for years. I have often heard that the brain is finished developing at age 25. I was 16 when I had my bleed and craniotomy. When the physical and occupational therapists told my Mom they couldn’t do anything more for me, she replied-“her therapy will be finished when SHE says it’s finished”. I continued with my therapy for another year and made more improvements during that year. I got rid of my cane soon after and my leg brace a year after that. Don’t give up. Grit and determination go a long way in recovering from AVM’s God Bless

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Thanks for your message. I’m wondering if 1973 is your birthday year. If so I’m one year younger than you and it’s been 31/2 years since your bleed?
How have things gone for you? My daughter starts high school in September and thankfully she’s come a long way in 4 years but school is still a challenge whereas before the bleed school was easy for her.
Mostly she gets tired so quickly so can’t maintain working in school for hours and hours.
We do worry about her ability to be independent in the future.
Thanks again,
Allison

Good luck to you and your daughter!! Here is my re-bleed story: Just Had a Second Bleed Last Month

1973 is the year of my bleed. My neurosurgeon was Dr. Caram, who is now deceased.
I am now 64(still here). I was 16 in 1973 when my AVM ruptured.I was scared to death. I was lucky and lived to tell the tale. Hard work and determination helped get back my right side. It isn’t perfect, but it works. I have a few headaches but found a neurologist who can control them. I live in Houston, Texas. I developed an autoimmune disease in 1991 which greatly affected my vision. With the grace of God and great specialists I was able to save my vision. It has been a long, crooked road. For the most part I am doing well. I certainly cannot complain with the Covid around.
Good luck and God Bless

I needed a way to record lectures in high school but it was not available. Anything using fine motor skills can wear you out. Can she go for fewer classes? Maybe get the basics out of the way and rest more? Just a thought.

Hi Garmeow

I’m sorry to hear of your daughter

One thing I will say like others have said, is a lot of the brain doesn’t stop developing until at least 25 and your daughter has youth on her side which is a very good thing

I wish you and her the best :slight_smile:

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God Bless your daughter’s FUTURE!

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