My 13 year old daughter had her AVM bleed in March 2020, she recovered from that but her AVM is inoperable so we were waiting for radiation therapy. Unfortunately her AVM bleed again in October 2020 and this time with more severe brain damage affecting her mobility. Can anyone share with me if you had multiple bleeds and how that recovery journey looks like?
Also we are in Vancouver, BC, but it seems to take forever to get the radiation therapy scheduled. We were just told to keep waiting. Does anyone have any similar experience or advice?