I’m so glad to find this network about avm survivors. Sometimes I feel lonely about being a patient and don’t know what’s gonna happen.
I’m 28 years old.
I got seizure when I was pregnant 32 weeks.
After emergency cs surgery, i became a mom with a beautiful baby boy. But my doctor tell me there’s a “bomb” in my brain and gonna kill me in anytime.
Now I have done my embolisation and waiting for gama knife in next 2 months. Im lucky to find this avm thing when still can fix it.
My husband tell me that maybe our son is an angel come to the earth and try to warn me about my illness.
It’s gonna be a long trip to get back to my old life ( or a new life? you can never tell )
I’m so relieved to have found this group!
Hope everyone here get well soon.