AVMs in multiple places? kidney and uterus!

Hi there everyone!

Id like to say thankgod for finding this website. Ive felt so alone for so long, like people listen but they dont really understand....

I just wanted to know how many other people have had AVMs in multiple places?
and how they were treated?

I am 20 years old. Last year i was diagnosed with AVMs in both kidneys after about 5 years of tests and invasive investigations...Its now been found in my Uterus also...

any advice or input would be great!