Well a little update- I finally got a walking boot, yay! It will definitely take some getting used to lol I’m not used to walking normally/heel toe. Furthermore I realized how little muscle I have in my leg/foot- I tried going up a flight of stairs and I barely made it! Lol I have so little muscle I can barely lift my foot up when I have the boot on, so I’ll definitely have to work on that
I’m still waiting to hear back from Dr. Yakes in Colorado, and while I’m waiting to hear back from him, I’m scheduling appointments to have an MRI of my left arm and neck done to check for possible AVM’s.
Quick synopsis of the arm/neck situation- 6 years ago I got hit in the back of the head, basically right where your head meets your neck and it curves in (sorry that’s the best way I know how to describe it). I felt the sharpest pain I’ve ever felt on my neck and my vision went black, I couldn’t see anything, and I honestly don’t know how long I was like that (no one ever told me) but it felt like forever. When my vision came back my hands were on my knees and I was only like a foot off the ground, someone told me I stumbled forward when I got hit but somehow I held my self up. About 6 months later I got hit on my arm and again that same sharp pain, now with both of these injuries I’ve seen multiple dr.'s and they’ve all said there’s no issue/nothing they can do.
The reason I think they might be AVM’s is because it’s a constant pain with both (just like my foot) and it gets worse when I use them (with my neck when I turn my neck), again just like my foot. Now I’ve had an ultrasound of my arm and my primary care dr. looked at and said that it’s a venous malformation and that there’s no issue/nothing needs to be done. I believe this is incredibly false because everything I’ve read on venous malformations says the patient feels no pain/has no symptoms and I’ve haven’t found anything that talks about enlargement of the patient’s skin (it’s so big in my arm, my arm is no longer flat, it’s like a giant mass taking over my arm). Furthermore I’m in constant pain and it inhibits my daily life/what I do so regardless even if it is a really rare and messed up venous malformation it has got to go
Now I’m wondering if anyone has been in/knows of someone who had a spinal AVM and extremity AVM’s? Also how long did you guys have to wait to hear back from your surgeon to start scheduling/etc.?I do realize that it could very well be any number of messed up medical issues causing the pain in my neck and arm. But I figure after years of dr.'s telling me there was no issue (just like my foot), I figure it’s as good a place as any to start.
Sorry for the long post, I do try to make them as short as possible I promise
As always any thoughts, advice, own experiences, are greatly appreciated Thanks!