Hi! I’m Liz, I’m in my early 40s and was recently diagnosed with a 3 cm AVM in the right occipital.
I’m in information gathering mode before making a decision regarding treatment, but given the location of the AVM, medical professionals seems to be leaning towards radiation because of risks associated with either a craniotomy or embolization.
I have plenty of research to do regarding radiation but the consensus among the neurologists and neurosurgeons I’ve seen, in addition to what I’ve read on this site, is to undergo treatment.
Has anyone with an AVM in the right occipital undergone radiation? If so, could you please share your experience with me? Truth be told I’m terrified of anything going wrong, from brain swelling, to vision loss, to hair loss, to pretty much anything and everything.
Any info you could share with me would be greatly appreciated!