In 2008 I had LINAC radiation at Johns Hopkins on my AVM in the left temporal area. Dr. Rigamanti said it was in “Park Avenue of my brain”. No bleeds, no symptoms whatsoever. We did angiograms in 2010, 2012, 2017. In 2017 they said it had shrunk down to 1/12 of it’s original size. I had migraines that would blind me prior to the radiation but didn’t have any after.
In January of 2019 I awoke in the night with a sharp pain to my left temporal area–went back to sleep thought nothing of it. About 18 hours later started noticing I was unable to speak. Had a “voice” just could find my words. Best way I can describe it. Took me about 3 days to decide–go to the emergency room. They did CT scan, MRI, EEG–found nothing. Took 7 days for my words to come back. Oh, one other symptom–I could not understand anything I read.
In March of 2019 we did another angiogram and only found the remnants of the AVM–it was 100% gone.
May 24–happened again. I felt the pain in my temporal region and lost my words. Hospital again–CT scan, MRI, EEG–found nothing sent me home. Saw a local (Kentucky) neurologist and he says Migraine with Aura. I don’t believe that for one minute.
Anybody experience symptoms after having LINAC radiation to brain AVM?