AVM left hand child 1 year 9 months

Hello everybody! Thank you for this site, I am grateful for the opportunity to share their feelings and experiences.
Please forgive me for my English, I do not know English. Therefore forced to use Google translator. I hope the meaning of written is still clear.
My little daughter Lisa at 6 months was diagnosed with AVM of the left hand. Her left arm is thicker than the right. In two places noise is excessive vessels. We got a recommendation to wait to daughter grew up. Every day we wear a compression sleeve with him hand was smaller in volume. Lisa AVM in the elbow, shoulder, axillary and subclavian vessels are also affected.
Now Lisa 1 year 9 months. For we have a doctor in the control inspection last week. It became worse. Arteries and veins further widened the rough noise in places malformations. We angiography was appointed in May 2016. And after angiography, they want to hold the first embolization. The doctor said that he can not wait any longer ... arteriovenous fistula she had a lot of ... Operations will be several.
I am very afraid and worried. Now Lisa is not in pain, her hand is not worried. I am afraid that after embolization she will experience pain. And I'm afraid that the malformation nachto progress. It seems to me that it is too small to begin with embolization.
We live in Ukraine, and will operate in Ukraine.
We asked for advice in Germany, in the clinic of Regensburg and it is recommended not to wait, and start embolization.
It is difficult to accept and difficult to make the right decision.
I do not know how to act . Should I start embolization such a small child ?

Hello Anna,

The decision to start treatment is a difficult one for anyone of any age to make. It sounds like you are describing an AVM that started in your daughter's hand and now is also present further up her arm. I think you are suggesting her AVM is active and growing, which is forcing you to decide what to do to try and stop the growth or progression of the AVM.

Each person here has had to decide whether to start treatment and also decide on a type of treatment. If you choose to start embolizations, our doctors here in Colorado (USA) would recommend you schedule the embolizations with short time intervals between embolizations as AVM's sometimes can grow quickly once embolizations begin... it is best to kill the Nidus (AVM's "brain") quickly and one of the best ways to do that is through short intervals between embolizations.

My advice to you wou

Hello! Yes, it is a difficult decision for us. It seems to me that if it were me, I would not doubt it, but difficult for a child to make a decision. Great fear paralyzes me. We even asked for advice as to South Korea - Samsung Medical Center. They also said that despite the young age, it is necessary to conduct embolization as quickly as possible. We have an opinion of three specialists in the AVM from different countries, and they all say that you need to act. Therefore, in spite of the fear, we will have to do it. After May 9, we're going to the hospital. I ask God every day that he helped my baby and doctors to overcome this disease.