AVM in Left Leg!

Hi, I am looking for more information on fast flowing AVMs found in the calf of your leg. My 19 yr old daughter has had three procedures on hers and it is still the size of a tennis ball. The procedures were performed with foam, a super glue and a ethenal which left her with third degree burns from the inside out. She has to keep it wrapped in a ace bandage on a daily bases to support the leg and to ease the pain since the AVM is too wrapped up in things to be removed. As a mother I want to make it better cause she made the dance team at her college, nothing will stop her. (FYI I also had a AVM in my leg as well as my brain)

Hi, Iva, you may want to connect with JD#2 (http://www.avmsurvivors.org/profile/JD2) and Margaret Parker (http://www.avmsurvivors.org/profile/margaretparker), who go to UVA Medical, or Melinda (http://www.avmsurvivors.org/profile/Melinda), who likes Ziv Haskel at U Maryland. A lot of leg AVM members see Wayne Yakes, but if you are not interested in any more alcohol embos, you may not want to go that route. Both of my kids are dancers, too (hence my screen name), and I know how hard it is on a dancer not to be able to dance to full capacity. Best wishes for you and your daughter!