AVMSurvivors.org is in the process of preparing a guide for individuals that have been diagnosed with an AVM. The purpose of the approximate 20 page guide is to provide hope for a vibrant future, information about treatments, life expectations, and help for family members encouraging an AVM survivor. Over the next week, you will see me asking various questions concerning your AVM experience that will be shared in this guide.By participating you will be a source of help & encouragement to newly diagnosed AVM patients, their family, and concerned friends. So over the next week or so, be looking for questions from me concerning your AVM. By responding to these questions, understand that your answer may or may not be shared in the guide. After the questions have all been answered, a team from AVMsurvivors.org will begin the editing process, which will conclude with a guide that for many years can be a reference of hope for those in our growing community.
To start the questions off, would you please answer the following for the guide team?
"What are some of the things you have done since your AVM was diagnosed that you never expected you would be able to do"?
As an example, I went para-sailing on Lake Tahoe in 2010 with my cousin. Being I have only use of one arm, and am mobility impaired, I never would have thought I could have done this after AVM diagnosis.
Here are links to the additional questions asked to date:
Thank you for participating, and the team looks forward to your answers!
The AVM Guide Team
James Larken Smith - Project Manager