AVM Survivors Network

AVM damage

When I was 55 my AVM was discovered and surgery in 2012. I am 70 now.
My question is: When did the damage occurr or has been ongoing?
In 6th grade, my parent took me out of shooll and I had a tutor for 3 monthsI don’t remember the reason. When I was in 8th grade, my parents were told
that the school would not allow me to take any classes that college prep. They told my parents that if I made a D to praise me, and if I had a failed grade that is was expected.

@Mary_K_Courtney Do you know if you had a bleed of your AVM? I know many people are born with their AVMs and then later in life find out they have them. Mine was caused after a CVST stroke which I got brain damage from that stroke but slowly recovered thank goodness.

Hi Angela,
Thank you responding to my post. No, I did not have a bleed. After I was told that I had a very large AVM. I have compleated 4 cognative tests and they all showed that I had a sever cognive skills. In a bell curve I Scored a range of 8 to 1. Zero score would put out of the bell curve. I didn’t have a clue that I been this SUPID.
My shrinks tells me that I don’t have any cognative thinking, he had me take another cognative test just to tell me that I can’t dive any more. He told me that he was writing to the DMV to make sure that I can’t drive any where in the USA. I have received two tickets when I was a student in College and I was involved in 2 accidents where the cars hit me.

I have been driving since I turned 16,(over 54 years of driving) and now he is telling that I can drive any more due to my

Please help me unstand why I can’t drive more.

I am really sorry you have received such negativity from your doctors and earlier with your teachers. My AVM showed up late in life and I was told I probably have had it since birth. I was given 3 options. I had cyber knife radiation. Surgery is not an option and the radiation didn’t work. Now after almost 20 years they are saying there is nothing that can be done for me. I am 70 and do have mini strokes, but still drive. I just pull over to the side of the road if I start to have an “episode”, call my husband and let him know where I am and will let him know when I am ready to drive again. They usually last between 15 and 30 minutes. I wish you the best and tell all you doctors to try and say something positive instead of being negative all the time.

Thank you for your support and leting me to vent.
Pray that I have strength to dig out of this dark hole.

Hi Mary K.:

Your doctor is an a-hole for speaking to you like that! Where is his compassion? You are not stupid. You have an AVM. We all have AVM’s and we are doing our best to deal with it as best we can. I hope you can find a more caring and compassionate doctor that can give you more hope and less negativity. God bless you.

Sharon D…