13 years post avm removal (craniotomy) here!
I want to know if anyone has declining vision since their AVM? My avm was located in the temporal lobe and slightly effected my vision- my eyes were crossed however this resolved in the hospital. I never wore glasses prior to my avm but started with this a small prescription (-.50 each eye). Years following it feels like my vision is declining rapidly. I’m wondering if anyone else has this problem! I have an eye appointment scheduled next week.
Yes! Me! I had a cranie in 2010. After I had slight vision loss. Then in 2019, I was at work and noticed suddenly I couldn’t see my right screen. I came home after work and my right eye basically quit working. I went to Duke and saw their team. They determined I had another bleed that was a stroke. I don’t know what’s next but I do want you to know I’m hoping you will do better and glad you found this site.
After my avm ruptured I had a lot of visual problems. It gets better then can deteriorate then get better again.
30 years later some days I can read a page of normal print in a book but other days either nothing or it all goes blurry in less than 1 paragraph.
I can see a football but having the coordination and eye skill to run with the ball is not there.
I hope you can get some treatment but the risks May be significant.
Mine wasn’t a craniotomy but still an avm so thought I’d let you know
I have had slightly declining vision for years prior to avm embolisation but I can say that since embolisation I experience exactly what Timb said. Identical!
Also find lights at night and driving at night very tiresome and disorientating. Prior to embolisation i never had an issue
Night vision is horrible for me too
I was diagnosed with an inoperable Right Occipital AVM that was intertwined with my vision cortex after having an aneurism rupture.Before having a recommended Gamma knife surgery I had to have another aneurism embolism first.After embolisation and gamma knife I noticed loss of peripheral vision in both eyes and also night time driving became almost impossible with disorientation,blurryness and very quick and painful eye fatigue.After returning to Drs. and forgoing a regime of tests it was determined I had lost 50% of peripheral vision in both eyes,caused by radiation damage to healthy tissue in land around vision cortex,no explanation was ever given for troubles with nite time driving.
I had an AVM 2 months ago and had the glue to fix it.
The location was above my right eye.
I have noticed my eye balls are sore and get tired.
Vision seem to be declining as well.
If I may, as I’m thinking about it, I had a fantastic time at Duke Neurosurgery, Duke Neuroopthamology, and Duke Vision center. They are at www.duke.edu. You can search on their sight for all remnant resources. Blessings as you continue!