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AVM Survivors Network

AVM and deficiency of Factor V (hemophilia)


#1

Dear All,

My son is 4 years and 6 months old and has been diagnosed with a left occipital AVM.
He has suffered subarachnoid hemorrhage and intraventricular hemorrhage in November 2015. Nikolas is currently doing very well. Additional Nikolas has blood deficiency of factor V. has anyone know a specialist doctor for Nikolas situation?

thank you in advance for your inputs
Eleni


Brain AVM rather peculiar, does anyone follow up avm without made any therapy?
#2

I’m going to feature your question to try to get more response. Also search the Drs link: http://www.avmsurvivors.org/page/recommended-doctors-1 in the meantime as the answer may also be there. I would also seek a referral from his original neurosurgeon.