I have a general question regarding risks and consequences of AVMs when going into high altitude. I have researched the internet and journals, but I cannot find any information about it. Only an older article stating that the risk of hemorrhage might be higher when going into real high mountains, which sounds plausible off course seen altitude sickness, blood pressure in thin air.
When last year I found out I had an AVM, my neurologist said I had no restrictions, only not to go into high mountains like the Himalayas. Which (besides all the other things!) scared me, because of 2 reasons. First, I had planned a trip to Nepal. Second, many years years ago, I was an active climber, and participated in one expedition to the Andes and climbed up to 6000 mtr. I suffered seizures and overall sickness (headaches, nausea), also for a long time after that trip. Also I had behavioral changes. Now I think it is because of the AVM getting active or irritated there. I feel super blessed it did not bleed then.
I would like to know if maybe anyone has had comparable or other experiences with an avm when going into high altitude (knowingly or in retrospective). Or if there is literature on this subject that I don’t now of.