Hi! My 8 year old daughter survived an AVM rupture summer 2018. She had a successful embolization with glue. We have had had several MRI and MRA this year to keep on top of it and find any new ones that may occur.
We just last week had a great follow up with her neurosurgeon. Latest scans totally clean, next scans in August, cerebral angio can be scheduled for the fall. As good as it can be.
Then, last night, she started complaining of a headache. Immediately, I start asking her the list of questions I ask when she has a headache since last summer. She went to bed with a headache, and I’ve been a wreck waiting for her to wake up. She’s finally awake and the headache is less, and in a different spot in her head, which I suppose should make me feel better, but I’m a wreck anyway. Even though our great follow up was 4 days ago.
Does this waiting for the other shoe to drop ever go away?