Hello there Jamie--
Thank you so much for posting your story and how you feel about what is going on in your life. How long have you had the headaches? I do truly hope that they get better and that you never have a bleed or additional symptoms.
Some of what you stated is what I am also dealing with--my cerebral AVM was found by accident. I incurred a concussion, so I went to the ER and they did an MRI/MRA. That was back in 2005. I always wanted to know the cause of my intense migraines, nausea, achiness, temporary paralysis and so on--I have endured migraines since I was 3 years old--I am now almost 50.
I have never had a bleed, and I have chosen, at this time, to not have anything done. The migraines have consumed our lives for the last 4+ years, as thy have gotten more frequent and last longer. We also have had a very good life--my wife and I have 4 kids, I have had a good career for the last 25 years, until the last 4 years, where I have been unable to work at all, and we enjoy our time outside of the painful days. It has been difficult, but we still move forward.
We look to God for His amazing healing, and if He chooses not to heal me at this time, we ask that I get some good days with relief of pain! I do not want surgery, and we do all that we can to ease the days that are painful--my family helps out so much by being understanding, and not judging or feeling put out when I need their help--that is the most important thing! I know that growing up with migraines, so many did not try to understand, and so little was known about this type of pain--there can be so much ignorance with the unknown!
I hope that this helps, Jamie, and whatever you decide to do, just make sure that you are prepared for the outcome, whatever it may be. That is a hard thing, but every day is a new day--we have challenges and we have successes--I have decided that not having any invasive procedures has more successes than down sides! I am content with that and so is my wife and family. I just keep living life with the zeal that I have always had, and I leave the rest in God's care--that is all I can do.
Please take care and write when you can. I would like to hear what others have told you, and again, we hope that you are healed of the headaches and do not get any more symptoms. Have a great day!