Ohh yea, very much so. My temperature control is a mess.
Prior to a diagnosis it was all written off as psychosomatic, I was imagining it all seemingly, so I ignored it.
I could be working away fine and then suddenly, like a wave washing over me, I was boiling. Post craniotomy I was working in an office, 90% of co workers were ‘older’ females, going through menopause and they would talk about ‘hot sweats’. Here I was (a much younger male) going through the same sorts of thing.
I’m in Australia and it gets rather warm here…understatement… it gets bloody HOT up to 48C last year and that was in the shade. I had to be under airconditioning at all times. If I went outside I need to throw cold water over my arms to cool down. The water stung as it went on, like alcohol on a cut.
At night I’d sweat, I’d sweat so much 1/2 way through the night I’d have to get a towel and dry myself, changing my bedclothes as they were saturated. My wife and I have a woollen underlay on the bed. On my side of the bed the underlay was decomposing underneath me due to sweat. One of my surgeries was the insertion of a shunt, a plastic tube that was placed down through the area of the hypothalamus (which plays a large role in temperature regulation). I queried the neurosurgeon if this may have damaged the hypothalamus. He was NOT happy about me asking such questions. He thought I was going to sue, that I was looking for money. I was looking for answers, not money. I had nor have no intention of suing. In my view if they didn’t operate I’d be dead. But still I didn’t get any answers.
So, I ignored it all again. Learnt to cope with it. Carried a can of deodorant (and a clean shirt) everywhere I went. Then years later the shunt broke, so they operated again, and again… …and again, all in 2013. Since then it’s not just the heat that kicks it out of me, but the cold too. Now, when it’s cold I sweat, making me more cold, and the heat hammers me something horrible. I have to keep myself within a temperature range or my symptoms can get chronic bad.
The neuros still don’t have any great answers, but I must admit I haven’t quizzed them too much for fear of getting a similar reaction as the former surgeon gave. I have gone investigating myself, trying to find a clue and I keep coming back to the hypothalamus theory as a cause. When I’ve put that to any dr’s the best answer I’ve gotten has been “Well, it could be…” It could be what??? Still no answers.
Could it be “…my body naturally evolving to something else…”? Well, yes, it could be.
But by the same accord ‘Could it be brain related’. Well, yes it could be.
And that’s about as clear an answer as I got.
Merl from the Modsupport Team