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AVM Survivors Network

Anyone had numbness after embolization

#1

My son had another embolization last week of his AVM near the basal ganglia. Everything went great, but he's had numbness of the left arm (with no voluntary movement possible) and left foot since the procedure. His CT scan showed no bleed or sign of injury. The doctors thought it was due to swelling and would resolve, but after a week on steroids there is not alot of improvement. Has anyone had a similar experience and, if so, did the numbness eventually resolve? He's 31 and has been through so much, I'm praying he can at least get back to status quo (weakness on left, but still with some use of his left hand). I'd appreciate hearing about any similar experiences. Thanks!

#2

Hi u and i were looking for the same answers my son started having numbness on his right and left sides alternating . this happened after his first dose of gamma knife radiation.

#3

Well, unfortunately after I had an embolization it was found after ruling every other reason out that the numbness I had in my left foot and leg was caused by a small stroke from the procedure. The numbness has never gotten better but I am able to walk on my leg and my leg strength has improved. Strokes are one of the possible side effects from having an embolization done. I am thankful that I didn't have a catastrophic stroke. I hope your son is going to see improvement and will re-gain use of his arm soon.

#4

my RIGHT BASAL GANGLIA AVM BLED THRICE AND UNTREATED I AM 34 NOW AND FEEL THAT NUMBNESS ON THE LEFT WITH LIMITED USEAND ALSO HAVING VISUAL NEGLECT ON THE LEFT.I M LIVING WITH IT SINCE MY FIRST AVM BLEED IN 1996..I WANT TO AFFIRM YOU BE POSITIVE PRAY TO ALMIGHTY BELIEVE HIM HE WONT FORSAKE YOU
GOD BLESS

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#5

I had Embos in 2009, and when I came out, I continually got weaker and weaker on my left side. They told me it wasn't from a bleed, simply everything hat was swelling around it. I am four years out, and I am still numb on my left side; from my shoulder to my foot. I can walk, but with having the swelling I've had, I do have a noticeable weakness, and my left arm/hand is very slow. I can't see with my pher vision.

#6

Everything will be fine for your son .... my prayers are with you and your family

#7

Well, I am updating after 8 years. My son turns 39 next week. His numbness got better, but he never regained any use of his left arm/hand. He also has weakness in left leg and loss of peripheral vision. Had his first ever seizure 5 years ago and on Keppra. On a positive note, he finally got a great job thanks to Vocational Rehab and just bought his first condo!! God is gracious and always gave us strength through his long ordeal!!!

#8

Wow Dianne! It’s great to hear from you and really encouraging to hear of your son getting a great job, despite his impairments.

If you fancy hanging around here, we have a Parents And Carers group these days, where you are bound to have experience worth sharing with newcomers to the site from time to time, who are going through the same as you did nearly eight years ago.

Wishing you a fabulous weekend!

Richard