I have had one AVM in my brain and one in my leg and now my teenage daughter has a AVM in her left calf.She has had five procedures on it but it is such a fast flowing thing all has not been able to be removed.My AVM left me with some sight loss and seizures but as a MOM I am looking for help and comfort for my both of us. Thanks
Hi Iva. There are 2 sub-groups here you may wish to join...
http://www.avmsurvivors.org/group/extremityavms
http://www.avmsurvivors.org/group/parentsofavm
Welcome to the site!