Any one live in the Houston area?

Types of Avm's Pulmonary AVM, Heart AVMs & HHT
41

Vicki, have you apllied for disability? A lot of AVM friends have. I had it for a short time,before I was married. Never hurts to try.

ite>Vicki said:

Hi Daniel. I moved from Houston in July, but will return in June to the Sugarland/Mo. City area. I can write you when I return to town if you’d like to me. I had 2 AVM’s, 3 years apart and received treatment at The Methodist Hospital. Received great care, but lost my insurance last year. I need to have the Gamma Knife done so I try to take things as easy as possible. Not always easy in the big city, is it? Hope all is well with you.

42

Hey all..

I guess I'm the new kid on the block of Pulmonary AVM diagnosed.

First of all..thanks to the creator of this site and forum..feels so good to share and read experiences. Good luck to all.

Now to my question. I live in Houston and am wondering if I can get any recommendations on places and Doctors where I can get my PAVM fixed. I hear Houston has some AVM centers but have not heard much about their expertise. UT Southwestern Dallas seems like the nearest Center of Excellence according to HHT.org. Any experience going there for treatment?

I am guessing Embolization is the way for me..would love to hear from folks who have gone through PAVM closures. (Most of the posts here are from Brain AVMs).

Well, thanks in advance and again....take care!

43


Yup we are all head cases here. :)

Welcome to the group. We have been meeting in person every 6 mouths this past year.

Add me as a friend.

Now I don't know any doctors that deal in PAVM. I do know that memorial hermann and methodist hospital are great places for great dotors.

44

Raghu, I have never heard of a pulmonary AVM. I pulled it up online, very interesting. I don't know of any pulmonary specialist in Houston,but I think Dallas would be a good place to start. We would love to have you join our AVM group. We'll be getting together again in May. Keep us posted!

hu saidHey all..

I guess I'm the new kid on the block of Pulmonary AVM diagnosed.

First of all..thanks to the creator of this site and forum..feels so good to share and read experiences. Good luck to all.

Now to my question. I live in Houston and am wondering if I can get any recommendations on places and Doctors where I can get my PAVM fixed. I hear Houston has some AVM centers but have not heard much about their expertise. UT Southwestern Dallas seems like the nearest Center of Excellence according to HHT.org. Any experience going there for treatment?

I am guessing Embolization is the way for me..would love to hear from folks who have gone through PAVM closures. (Most of the posts here are from Brain AVMs).

Well, thanks in advance and again....take care!