So I have debilitating headaches for as long as I can remember. I was diagnosed with a left Temporal avm in 2006 (headaches started in 2005). I started treatments in 2007. Which was mulitple emblozations, mulitple gammas knives.
Now I do mulitple things to try and keep my headaches under control. Such as nerve blocks, trigger points, Botox, medicine. Nothing truly works to where I can do things and not get a terrible headache.
So my neuro is thinking that I need a craniotomy to get rid of the 2 fistulas that were caused by the treatments of the avm. He has treated those as well, but I’d love to be headache free or at least for them to be lessoned!
Has anyone been in this boat or similar? I’m nervous but happy if the surgery is possible… Thanks.