It's almost a year into my 8 year old's recovery.
He still doesn't walk, talk (some words but it's real labored), and needs help with everyday things. After his 3 month stay at rehab this summer, I started to prepare myself that he might not be able to in the future. I won't give up though.. I still do his therapy at home, and I know a year is still a short time.
It's his personality and mentality that has completely changed and what we have really struggled with. He's never happy, he gets delusional and has hallucinations. He has no drive to get better. He hates everybody and physical fights with us. He's constantly biting himself.. there has been a couple of occasions where he's almost bit off his fingers. He tries to throw himself out of bed.. the list goes on. He screams when we try to prevent him from hurting himself (loudly I might add even though he has a hardtime talking).
His only way of communication is a sheet of letters. Thankfully he's a great speller so he spells out everything. Can't write because he developed tremors. But I'm the one who really talks with him, because he spells fast and I can usually predict what he will say. He does have his fun with his brother playing games and laughing.. but it lasts for a hour or so. He either starts biting or just gets mad at anything. Or he just falls right out. In seconds - snoring and all.
We've tried so many meds.. the neurologists told me to take him to a Psychiatrist because he's all out of ideas. We saw one at rehab, but they gave us no help. But I'm looking for another.
I read a lot of AVM stories.. I can't find anyone who has had a similar problem as what we're going through. Nothing online, I've googled a million things trying to find some insight or help.