Mom, if you are asking me....here is my profile:
My AVM was diagnosed in January of 2007. I am a true believer in finding the BEST AVM neurosurgen, I went to Mass General Hospital and decided that Dr. Christopher Ogilvy and Dr. Paul Chapman at Mass General Hospital were my best options. Due to my AVM's size (small) and location (far back towards the left lateral sinus), my only chose was to have Proton Beam Radiation (with beads included), by Dr. Paul Chapman, which was performed on May 22, 2007. Dr. Chapman put in three beads exactly in my AVM area (which they will not ever remove), for the radiation to go to the perfect spot.
Unfortunately, six months later, on 12/24/2007, I had a massive hemorrhage in the left temporal lobe, as well as in the occipital lobe . Doctor Ogilvy performed a craniotomy to remove as much of the bleed, as possible. They could not do anything to remove my AVM, due to it's location. I was in the hospital for 8 days, then sent for Rehab for 3 weeks before I was sent home. After my craniotomy, I was diagnosed by a Neuropsychologist at MGH due to the AVM rupture was Anomic aphasia, Alexia without agraphia and short term memory loss. I also have temporal lobe seizures and take Keppra to prevent seizures. In addition, I have minor vision loss on both the right and left side of my eyes.
Two years after my radiation, on 8/21/09, I had my third angiogram performed by Dr. Ogilvy and was told that my AVM had totally disappeared! The Proton Beam radiation performed by Dr. Chapman worked! Thank God!!!!!