Hi guys its getting close to 9 years since my AVM was removed via craniotomy from my right frontal lobe and that is great… BUT… as of late I have been having a few episodes that have concerned me and at one point thought i was having mini-strokes.
Ive had about 3-4 episodes where i will be talking normally with no issues and out of nowhere i lose my words and feel like someones hit a reset button in my brain… its scary as i then get a funny feeling in my body and face gets tingles and feels numb for a few minutes which triggers panic attack… that does not help the situation. I then have a headache at the back of my head 20-30 minutes later which goes away with paracetamol. During these attacks I do clench my fists and do all the stroke type excercises to make sure its all neurologically okay.
Had a recent EEG that came back pretty much fine and undertaking further checks within an epilectic centre as per my Neurosurgeons recent consultation advice. She thinks I may be having partial seizures and wants to investigate further as I have had no real history with them… it is worth noting that we just welcomed our third son into the world a month prior and were going through quite a stressful and lack of sleep faze prior to these incidents.
I know lack of sleep and stress can increase seizure activity and i tend to feel cloudy minded on most days before lunch where I feel like i cant concentrate properly and my attention span drops… I also had not seen my neuro since 2016 with a similar type incident where i was conscious and went blank for a few minutes and felt like I was reset… ironically my second child was born during this time and was going through the same lack of sleep period… which is interesting to say the least.
Im just hoping that there is nothing seriously wrong with me as I do want an MRI as I sometimes think the worst… I sometimes think I have had too many CT scans in life and maybe I have some type of brain tumour etc etc etc which is not healthy.
I really want to get through this as I have 3 small children under the age of 5 who really depend on me and I need to fight fit for them and myself… thank you for allowing me to vent my thoughts here and all comments are appreciated… God bless!