I had my 6th month follow up for my gamma knife surgery. I drove up on april 19th, stayed at the worst hospitality house ever! The air conditioner was broken and there was no tv.. MISERABLE!! so then the next morning i woke up at 3am cause i was way too nervous my appointments that i couldnt sleep. This was the first time I went to see my neurosurgeons alone. We live about 2 and a half hours from my doctors so i was scared and nervous. The day of my appointments i got to the research center an hour early cause i was scared i was gonna be late or get lost. Got my MRI done and then went to see my neurosurgeons to hear the results. I was shanking and was about to cry just cause I knew what I wanted to hear but was scared i wouldnt hear it. The Nurse practioner came in and asked me about how ive been feeling and the symptoms ive been experiancing and evry time i said something she looked at me like i was crazy! I told her i have been having the worst migraines ive ever had, I got to the ER at least once month in just amazing pain that makes me sick and i cant manage it. My left side is weaker and my memory is a little rough.
She then went to go tell my neurosurgeon and as soon as he came in my heart was in my chest. I was expecting him to say oh you have no reason to be feeling like this your all better! And part of me really wanted him to say that.. But no he said every symptom ive been experiancing is due to the large amount of brain swelling i have from the gamma knife surgery. He said the AVM looks like its starting to close off but it is still about the same size as it was before. He said most f the swelling is on the gross motor plate that controlls my left side so thats why me left side is freaking out and that alos why my headache are unberable. The pressure is just soo great it makes me sick. he put me on a months course of steroids and he said instead of coming back in 6 month again i have to come back in 3 months cause he is worried about the swelling. He said yes the swelling is very painful but it is a good sign cause it means im reacting to the raidation.
I left there feeling kinda realived but also sad, discouraged and a funny feeling in my gut like i wanted to cry like never before. I Think I was telling my self not to get my hopes up but I still let my self. I just wanted him to say congratulations no more AVM!! but he didnt. Im over being in pain, im over being restricted, im over being sick, IM OVER IT ALL!!!!!!
Anyways just thought i would give an update.. I love ya'll so much and thanks for always encouraging me!!
Brittany XOXO :)