I would advise all AVM sufferers to get 2nd opinions when problems arise.
I attended a hosp 12 days ago due to loss of complete feeling on right hand side of body except for my face. When I saw the doctors after 5 hours of being treated from a waiting room they ran a ct scan. It came back clear to them which we were relieved of and he advised me to take pain killers for the headache but the loss of feeling he couldnt explain. They were more concerned of the headaches and nothing else.
Attended anpther hosp 2 days later as symptoms incresed and I found out that the ct scan HAD CHANGED, my avm had grown and possibly has another aneurism underneath and that I had suffered a stroke. Immediately admitted and have been in hosp for 10 days now, what with bank holidays and everything. Dont know if there is any nerve damage as of yet or what will return in time but it could have been stopped if only doctors knew what an avm was and the dangers that we all face by having them.
I thyerefore urge everyone to get a 2nd opinion if the first is not from a qualified neuro-surgeon as they tell us that they are the experts and they know what they are looking for x