Just home from visit to neurosurgeon with daniel.Another CT scan will have to be done or possibly mri scan to have a check on what the changes are on the fuid in the brain,then the visit to another neurosurgeon in Edinburgh of which is approx 350 miles from where we live ,to discuss ANY options we may have (but the neurosurgeon we just visited does not think anything can be done) A little bit more info i received was the size of daniel’s avm is 5cm x 3cm x3cm in the central brain stem and this is the reason they are not keen on any of the options as the risk of any is paralylised from the eyes down!!
Daniel has lost sight in his right eye completely and we were told today he will go blind and is this is not so good news at all!! so to Daniel and evry 1 else out there my prayers i hope will be answered by some miracle…