As someone who has gone down the neurosurgical route a few times, I MUST agree with Mike5 there are no 100% guarantees with neurosurgery, which ever decision you make. As you have found, some neuros will recommend a specific treatment plan, where other neuros may question that plan.
Now, my situation is non-AVM related but the initial plan was to operate, fix and everything returns to normal, only that didn’t happen. Three months later I was back having further neurosurgery, a craniotomy and I must agree with Mike5 "…craniotomies are no picnic…’
One thing I have found is every neuro has their own interpretation, their own views and opinions. It’s not that one is right and the other wrong, but rather an opinion from that specific specialist. I’ve had all sorts of opinions from ‘…leave it all alone, it’s too risky…’ to ‘…let’s just cut it all out…’ so I had to weigh up my options, for me. Again, for me, leaving it was not an option, but then neither was cutting it all out. It was all a bit close to portions of the brain I needed, so full removal was too big a risk, but a partial resection was one option given by one neurosurgeon and he did the surgery. Like I said earlier, things didn’t exactly go to plan, but I don’t blame the surgeon for that. In my opinion if they didn’t operate I’d be dead. I’ve just had to learn how to best manage where things are for today.
And once again I’ll just agree with Mike…
Merl from the Modsupport Team