Hi I have a 14 year old niece who has just been to see a consultant in Sheffield, UK. She has been advised to start Gamma knife surgery in January. The avm is 6.5cm, from what I understand, purely from the internet, this is quite a large one. She has been told that the treatment poses a risk to her optical nerve and memory. I have also read that the success rate of gamma knife with large avms isn’t too good.
I have been reading through this forum and have seen proton therapy pop up. As far as I am aware this treatment isn’t yet available in the UK. Can anyone explain whether they believe this whether this may be a viable option? Would she be able to get an appointment in a European clinic?
Thank you for any help, Lisa