Hey everyone. Some of you already know the details of my story-- two bleeds, a week apart, followed by a successful craniotomy 14 months ago. I have relayed the details of my lingering deficits-- word finding, attention span, sometimes explosive temper (they are, after-all, teenaged boys) and the strategies I have explored to cope with them.
Recently I was at a grocery store, in line to cash out, when suddenly my head turned (without me wanting it to ) and my right arm and leg started flexing. Well, the next thing I knew I woke up in an ambulance heading to the hospital. I had a tonic-clonic seizure (used to be called Grand Mal) , my first, and so far only.
However, the neurologist who saw me informed me that she was sending a report to the Ministry of Transport ( driver’s licence gone ) and that I would need to be on meds for the rest of my life. (Keppro).
Anyway, went back and saw the neurosurgeon who did my craniotomy, and he did a ct scan, and said that it was not out of the ordinary, that I had two red flags for having a seizure (AVM and brain surgery/scar tissue) but that hopefully I would only have the one seizure, and that I could ease back a bit on the Keppro (reduce the dosage gradually).
I am writing to ask if it is common to have seizures start a year or more after the surgery, if other group members have experienced this, or heard similar stories.