AVM Survivors Network

11 years with AVM

I still have Migraine headaches 24/7.
Have Burning feeling all of my head 24/7.
My eyesight still go in and out.
Sharp pains in my head all the time.
Bad depression and more.
I just thank God for every day I see, Although the doctors just keeping a eye on it and like just waiting for the day :man_facepalming::man_facepalming::man_facepalming:

Donnell, Hi! Long time no hear!

It sounds like you’re having quite a tough time, buddy. Did you have your AVM operated on (e.g. with some glue or via radiotherapy or an actual open surgery) or are the docs just having to keep an eye on it? And do you have some meds for your pain?

Sending you my best wishes,


They glue it on the right side of my brain, and thank you. Although I’m in so much pain every minute of the day. I’m still thankful, because I get to see another day.

I think it is a wonderful thing that you say so. Bless you.

My brain has more than the average amount of glue in it, too, though I know I am so lucky not to have headaches like you. You’re a very special person.

Very best wishes,