1 year since radiotherapy

WELL IT IS BEEN 1 YEAR SINCE HAVING THE LINAC RADIOTHERAPY DONE AND YES THERE IS A GOOD SIGN, WE WERE TOLD NOT TO EXPECT ANY CHANGE IN THE FIRST YEAR AS IT TAKES AT LEAST 2 YEARS BEFORE YOU SEE ANY SHRINKAGE BUT… MINE HAS SHRUNK 2MM BUT HEH ANY SHRINKAGE HAS TO BE GOOD SHRINKAGE RIGHT? IM SORRY IM A BIT HOPELESS AT KEEPING EVERYONE UPDATED I STILL JUST THANK EVERYONE FOR BEING HERE FOR ME ALL OF THE TIME! LIFE IS BUSY THE NUERO SAID THE TINGLING AND NUMBNESS IS PROB S MALL SEIZURES AS LONG AS THEY STAY SMALL! I WILL KEEP YOU ALL UPDATED, THANKYOU ALL MY WONDERFUL FRIENDS.

Janine,
Thank you for the update. I’m going to be receiving radiation here in the next 2weeks-1month and I know that each case is different but you have given me hope. Thanks for sharing and I wish you the best on the rest of your journey.

Janine I am HAPPY DANCING about shrinkage !!!

Hi Janine,

Glad the AVM has already shown some shrinkage. May it grow smaller and smaller day by day.

Take care,

Debbie

Any shrinkage is good news!

Hey Janine, Do you know the original size of your AVM?