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AVM Survivors Network

Types of Avm's   Pulmonary AVM, Heart AVMs & HHT


HHT Awareness Month (1)
Hereditary (8)
Can you feel where your lung was coiled? (3)
Hht (5)
HHT questions (1)
Hht (2)
Bloody Sputum AFTER Procedure [PAVM] (1)
News on hht (2)
Anyone an AVM (pulmonary) without HHT? (2)
My Neurologist/Neurosurgeon says AVM's are not Hereditary (12)
Scared, lonely and cunfused =( ( 2 ) (32)
Feeling weak tonight, just need somewhere to vent ( 2 ) (22)
HHT referral (2)
Genetic Testing - HHT (7)
HHT testing (10)
New here, with a newly diagnosed son (11)
AVM's Hereditary? ( 2 ) (23)
Any idea what this means? (10)
Hht (3)
Those with AVMS of the lung OR HHT (4)
Hht (4)
Do any of you have a child or family member that had/has an AVM in addition to yourself? Did any family members have scans that ruled it out? ( 2 ) (31)
Any one live in the Houston area? ( 2 3 ) (44)
Post-embolization pain? (3)
Eembolization(s) scheduled for the 2oth on 7+ PAVMs at OHSU . . . looking for a few suggestions ;) (6)
I really need some advice . . . HHT center or Interventional Radiologist? (3)
Anyone out there have HHT? (6)