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AVM Survivors Network

Types of Avm's   Pulmonary AVM, Heart AVMs & HHT


Topic Replies Activity
Can you have more than one avm in your body? 16 January 20, 2014
What are the possiblities of getting dementia? 2 January 8, 2014
Please help. Ashton almost died from massive nose bleed related to AVMs 24 June 26, 2013
HHT Awareness Month 1 June 7, 2013
Hereditary 8 April 2, 2013
Can you feel where your lung was coiled? 3 June 24, 2012
Hht 5 June 6, 2012
HHT questions 1 May 27, 2012
Hht 2 May 25, 2012
Bloody Sputum AFTER Procedure [PAVM] 1 May 3, 2012
News on hht 2 March 21, 2012
Anyone an AVM (pulmonary) without HHT? 2 February 10, 2012
My Neurologist/Neurosurgeon says AVM's are not Hereditary 12 February 3, 2012
Scared, lonely and cunfused =( 32 January 2, 2012
Feeling weak tonight, just need somewhere to vent 22 October 26, 2011
HHT referral 2 September 22, 2011
Genetic Testing - HHT 7 August 11, 2011
HHT testing 10 July 12, 2011
New here, with a newly diagnosed son 11 July 11, 2011
AVM's Hereditary? 23 June 5, 2011
Any idea what this means? 10 April 28, 2011
Hht 3 April 18, 2011
Those with AVMS of the lung OR HHT 4 March 22, 2011
Hht 4 March 4, 2011
Do any of you have a child or family member that had/has an AVM in addition to yourself? Did any family members have scans that ruled it out? 31 February 20, 2011
Any one live in the Houston area? 44 January 23, 2011
Post-embolization pain? 3 January 20, 2011
Eembolization(s) scheduled for the 2oth on 7+ PAVMs at OHSU . . . looking for a few suggestions ;) 6 August 31, 2010
I really need some advice . . . HHT center or Interventional Radiologist? 3 July 16, 2010
Anyone out there have HHT? 6 February 4, 2009