AVM Survivors Network

Types of Avm's

Gastro AVM Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members <em>have</em> had successful interventions. Facial AVM Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories.
About the Types of Avm's category [Types of Avm's] (1)
Continual symptoms [Cerebellum & Brainstem] (9)
Calf motion issues [AVM in Extremities] (2)
Ulcers ( 2 ) [AVM in Extremities] (23)
Uterine AVM after miscarriage [Pelvic & Uterine AVM] (5)
Avm in my right hand [AVM in Extremities] (10)
Post Uterine AVM embolization and 1st period [Pelvic & Uterine AVM] (4)
Vertigo question [Cerebellum & Brainstem] (10)
Tongue AVM [Facial AVM] (3)
Recovery after open brain surgery for DAVF [Types of Avm's] (4)
AVM and amputation ( 2 ) [AVM in Extremities] (21)
Cerebellum & Brainstem AVM [Cerebellum & Brainstem] (19)
AVM on tongue worsening; no treatment plan- anyone else? [Facial AVM] (6)
Change in diagnosis? [Facial AVM] (2)
AVM Update and Questions? [AVM in Extremities] (20)
Avm spine - embolization at T11-12 [Spinal AVM] (9)
Help - Recovery from Paralysis ( 2 ) [Spinal AVM] (30)
My AVM story [AVM in Extremities] (6)
Pregnancy [Facial AVM] (1)
Advice on symptoms [Cerebellum & Brainstem] (1)
Brainstem/Consciousness affected the most [Cerebellum & Brainstem] (5)
Cerebellum AVM bleed into the Brainstem ( 2 ) [Cerebellum & Brainstem] (27)
Occipital AVM to be resected... advice? [Types of Avm's] (12)
Fever and another question [Cerebellum & Brainstem] (6)
Has anyone experienced severe leg/buttock pain following pelvic AVM embos? [Pelvic & Uterine AVM] (1)
Inoperable AVM ( 2 3 4 ) [Cerebellum & Brainstem] (69)
New to group. Multiple Avms in hand [AVM in Extremities] (4)
Exercise [Cerebellum & Brainstem] (17)
Cerebellum bleed advice please [Cerebellum & Brainstem] (8)
UAVM is back with a vengeance [Pelvic & Uterine AVM] (2)