AVM Survivors Network

Types of Avm's

Gastro AVM Facial AVM Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members <em>have</em> had successful interventions.
About the Types of Avm's category [Types of Avm's] (1)
Me and my Left Arm - Considering New Treatments After Years of Wait and See [AVM in Extremities] (3)
Update on my Cerebellum bleed [Cerebellum & Brainstem] (6)
Iron replacement has lessened extremity VM pain [AVM in Extremities] (17)
Cerebellum AVM bleed into the Brainstem ( 2 ) [Cerebellum & Brainstem] (33)
13 yr. old with mid-thigh high-flow AVM fed by femoral artery.... seeking the best to treat it and need guidance [AVM in Extremities] (4)
Help - Recovery from Paralysis ( 2 3 ) [Spinal AVM] (40)
Five days post sclerotherapy/embolizations [AVM in Extremities] (8)
Can a pelvic AVM be removed? [Pelvic & Uterine AVM] (2)
Seeking advice on PAVM [Pulmonary AVM, Heart AVMs & HHT] (6)
Calf motion issues [AVM in Extremities] (3)
Any advise for a first time mom giving birth in 4 weeks with knee AVM? [AVM in Extremities] (4)
HOD - Hypertrophic Olivary Degeneration [Cerebellum & Brainstem] (8)
Spinal Group Check Out This Exoskeleton Study [Spinal AVM] (11)
Ongoing symptoms Spinal AVM [Spinal AVM] (9)
Compression? [AVM in Extremities] (12)
Spinal DAVF [Spinal AVM] (3)
UAVM is back with a vengeance [Pelvic & Uterine AVM] (3)
How to bear physical pain? Questions about AVM (on the leg) [AVM in Extremities] (16)
Severe hair loss after Cyberknife procedure [Cerebellum & Brainstem] (2)
How long does it actually take to heal - cerebellum bleed ( 2 ) [Cerebellum & Brainstem] (36)
Getting worse after surgery ( 2 ) [Spinal AVM] (39)
Doing Better [Spinal AVM] (2)
Dr. Suen [Facial AVM] (3)
Why I haven't been here, why I'm here today, and why I'm writing this post ( 2 ) [AVM in Extremities] (37)
Continual symptoms [Cerebellum & Brainstem] (16)
Happy New Year! I'm so grateful for this group [Spinal AVM] (4)
Medication for pain and swelling? [Facial AVM] (9)
AVM in hip bone/Looking for Dr in Philadelphia/USA [AVM in Extremities] (7)
Site relaunch: Wondering where all the spinal AVM posts are? ( 2 ) [Spinal AVM] (34)