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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions.
Topic Replies Activity
About the Types of Avm's category 1 September 20, 2016
Pavm symptoms 2 July 15, 2019
Can you feel where your lung was coiled? 6 July 15, 2019
Pulmonary AVMs without Feeder Vessels? 7 July 15, 2019
Cerebellum & Brainstem AVM 21 July 11, 2019
Surgery.. yet again 3 July 6, 2019
Venting about AVM in heel 3 July 5, 2019
Ever been hit in the AVM? 13 June 19, 2019
AVM and amputation 22 June 9, 2019
Need help in contacting a doctor 4 June 9, 2019
Pain, tingling, and new symptoms 5 May 29, 2019
Medical drama/venting 7 May 29, 2019
Back to embolizations after 9 years- venting 3 May 29, 2019
Suggestions/ experiences for Dr.'s in Chicago/IL? 17 May 19, 2019
Ulcers 24 May 18, 2019
Nerve pain after treatment 4 May 17, 2019
18 year old son was just diagnosed 9 May 16, 2019
AVM-Surgery 2 May 6, 2019
Article on Spinal AVM's 1 May 4, 2019
Extremity Doctors in Texas? Newly diagnosed Pain/numbess 6 April 30, 2019
Compression? 13 April 29, 2019
Can a pelvic AVM be removed? 3 April 27, 2019
Help - Recovery from Paralysis 49 April 26, 2019
Trying To Decide 4 April 17, 2019
Just Diagnosed with Right Cerebellum AVM....have questions! 25 April 17, 2019
Me and my Left Arm - Considering New Treatments After Years of Wait and See 14 April 11, 2019
Advice on where to stay 2 April 11, 2019
Negative doctors 29 April 7, 2019
Has anyone had a recurrence after embolization 4 April 5, 2019
Chest/back pain 2 April 5, 2019