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AVM Survivors Network

Types of Avm's


Gastro AVM Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Facial AVM Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement.
Topic Replies Activity
About the Types of Avm's category 1 September 20, 2016
AVM/Life Update 3 November 19, 2019
Cerebellum AVM bleed into the Brainstem 36 November 17, 2019
Right Foot AVM-I need advice please 15 November 15, 2019
Still improvements are happening....2 plus years on 12 November 11, 2019
Tongue AVM 2 October 30, 2019
Residual Flow or New PAVM 3 October 27, 2019
Iron replacement has lessened extremity VM pain 18 October 26, 2019
STS Foam Sclerotherapy 7 October 26, 2019
Venting about AVM in heel 4 October 20, 2019
Something New 5 October 16, 2019
Ongoing symptoms Spinal AVM 14 October 15, 2019
This Is My Second Posting 1 1/2 Years Post My Wife's AVM Rupture 10 October 12, 2019
AVF 2 yrs post surgery 6 October 10, 2019
Feedback for treating pulmonary AVMs at Stanford or UCSF 2 September 18, 2019
Tongue AVM 5 August 22, 2019
Cerebellum & Brainstem AVM 28 July 29, 2019
Pavm symptoms 4 July 18, 2019
Can you feel where your lung was coiled? 6 July 15, 2019
Pulmonary AVMs without Feeder Vessels? 7 July 15, 2019
Surgery.. yet again 3 July 6, 2019
Ever been hit in the AVM? 13 June 19, 2019
AVM and amputation 22 June 9, 2019
Need help in contacting a doctor 4 June 9, 2019
Pain, tingling, and new symptoms 5 May 29, 2019
Medical drama/venting 7 May 29, 2019
Back to embolizations after 9 years- venting 3 May 29, 2019
Suggestions/ experiences for Dr.'s in Chicago/IL? 17 May 19, 2019
Ulcers 24 May 18, 2019
Nerve pain after treatment 4 May 17, 2019