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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions.
Topic Replies Activity
About the Types of Avm's category 1 September 20, 2016
AVF 2 yrs post surgery 5 September 22, 2019
Feedback for treating pulmonary AVMs at Stanford or UCSF 2 September 18, 2019
Residual Flow or New PAVM 2 August 30, 2019
Tongue AVM 5 August 22, 2019
Ongoing symptoms Spinal AVM 10 August 16, 2019
Cerebellum & Brainstem AVM 28 July 29, 2019
Pavm symptoms 4 July 18, 2019
Can you feel where your lung was coiled? 6 July 15, 2019
Pulmonary AVMs without Feeder Vessels? 7 July 15, 2019
Surgery.. yet again 3 July 6, 2019
Venting about AVM in heel 3 July 5, 2019
Ever been hit in the AVM? 13 June 19, 2019
AVM and amputation 22 June 9, 2019
Need help in contacting a doctor 4 June 9, 2019
Pain, tingling, and new symptoms 5 May 29, 2019
Medical drama/venting 7 May 29, 2019
Back to embolizations after 9 years- venting 3 May 29, 2019
Suggestions/ experiences for Dr.'s in Chicago/IL? 17 May 19, 2019
Ulcers 24 May 18, 2019
Nerve pain after treatment 4 May 17, 2019
18 year old son was just diagnosed 9 May 16, 2019
AVM-Surgery 2 May 6, 2019
Article on Spinal AVM's 1 May 4, 2019
Extremity Doctors in Texas? Newly diagnosed Pain/numbess 6 April 30, 2019
Compression? 13 April 29, 2019
Can a pelvic AVM be removed? 3 April 27, 2019
Help - Recovery from Paralysis 49 April 26, 2019
Trying To Decide 4 April 17, 2019
Just Diagnosed with Right Cerebellum AVM....have questions! 25 April 17, 2019