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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions.
Topic Replies Activity
About the Types of Avm's category 1 September 20, 2016
Pain, tingling, and new symptoms 2 May 24, 2019
Suggestions/ experiences for Dr.'s in Chicago/IL? 17 May 19, 2019
Ulcers 24 May 18, 2019
Nerve pain after treatment 4 May 17, 2019
18 year old son was just diagnosed 9 May 16, 2019
AVM-Surgery 2 May 6, 2019
Article on Spinal AVM's 1 May 4, 2019
Back to embolizations after 9 years- venting 2 April 30, 2019
Extremity Doctors in Texas? Newly diagnosed Pain/numbess 6 April 30, 2019
Ever been hit in the AVM? 4 April 29, 2019
Compression? 13 April 29, 2019
Can a pelvic AVM be removed? 3 April 27, 2019
Help - Recovery from Paralysis 49 April 26, 2019
Trying To Decide 4 April 17, 2019
Just Diagnosed with Right Cerebellum AVM....have questions! 25 April 17, 2019
Medical drama/venting 5 April 15, 2019
Venting about AVM in heel 2 April 12, 2019
Me and my Left Arm - Considering New Treatments After Years of Wait and See 14 April 11, 2019
Advice on where to stay 2 April 11, 2019
Negative doctors 29 April 7, 2019
Has anyone had a recurrence after embolization 4 April 5, 2019
Chest/back pain 2 April 5, 2019
Cerebellum AVM bleed into the Brainstem 34 March 26, 2019
Update on my Cerebellum bleed 6 March 25, 2019
Iron replacement has lessened extremity VM pain 17 March 24, 2019
Lots of questions 2 April 5, 2019
13 yr. old with mid-thigh high-flow AVM fed by femoral artery.... seeking the best to treat it and need guidance 4 July 20, 2017
Five days post sclerotherapy/embolizations 8 March 12, 2019
Seeking advice on PAVM 6 March 6, 2019