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AVM Survivors Network

Types of Avm's


Gastro AVM Facial AVM Pulmonary AVM, Heart AVMs & HHT Group for discussion on pulmonary AVMS, also heart and HHT (hereditary haemorrhagic telangiaectasia) as these seem interrelated. AVM in Extremities Use the AVM in Extremities category for AVMs in arms, legs, wrist, ankle, hand, foot. Spinal AVM This category is for people with a spinal AVM to collaborate, share stories, find related stories. Pelvic & Uterine AVM Please use this group to share experiences, concerns, good news etc. regarding AVMS in the pelvis or uterus. I hope that by creating this group, it will help especially women affected to share concerns or give encouragement. Cerebellum & Brainstem I’ve created this space with a view to us collating information about AVMs in the cerebellum, brainstem, pons and any other deeper-brain AVMs, as often these are referred to by doctors as untreatable but where I feel I’ve seen information that some of our members have had successful interventions.
Topic Replies Activity
About the Types of Avm's category 1 September 20, 2016
Up coming appointment 7 March 16, 2020
Cerebellum bleed advice please 11 March 13, 2020
I have an AVM in my Cerebellum, Anyone else had one there? What was your Treatment? 16 March 12, 2020
Has any one had a cerebellar AVM rupture? 13 March 12, 2020
Calling all parents(and beyond)..... I have questions 14 March 12, 2020
Had an AVM in my cerebellum 5 March 12, 2020
Avm on cerebellum 9 March 12, 2020
AVM brain surgery in 4 days...trying to stay calm 19 March 12, 2020
Cerebellum AVM bleed into the Brainstem 37 March 12, 2020
Has anyone had a Spinal AVM? 26 March 8, 2020
New to uterine AVM after misoprostol 12 March 4, 2020
Facial AVM and sleep apnea mask pain 2 February 29, 2020
Can a pelvic AVM be removed? 5 February 29, 2020
AVM on left hand 6 February 4, 2020
AVM of hand and and digits anyone? 13 February 18, 2020
Surgery tomorrow 6 February 18, 2020
Bleomycin for facial AVM's 4 February 19, 2020
New to group. Multiple Avms in hand 5 February 2, 2020
Compression? 14 February 2, 2020
AVM in left leg 9 February 2, 2020
Tongue AVM 11 January 30, 2020
What are your PAVM symptoms? 5 January 23, 2020
Need help 4 January 2, 2020
Still improvements are happening....2 plus years on 13 December 25, 2019
UAVM is back with a vengeance 5 December 18, 2019
Right pons DVA/AVM 11 December 12, 2019
Thoracic Epidural Arteriovenous Malformation Anyone else have it? 9 December 9, 2019
Help - Recovery from Paralysis 49 April 26, 2019
Ongoing symptoms Spinal AVM 15 December 8, 2019