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AVM Survivors Network

Parents and Care Givers of AVM Patients


Topic Replies Activity
Prayers for my son Anthony 3 March 3, 2016
Here is some HOPE coming up on 2nd Anniversary of our 12-year-old's hemorrhagic stroke 7 February 17, 2016
Looking for help and hope for my 12 year old daughter 8 November 18, 2015
Nicholas 23 November 14, 2015
My daughter is 4 has AVM 19 October 1, 2015
3rd Craniotomy for son in 18 months?! 4 June 24, 2015
Is it ok to be playing hockey and is it safe to give my daughter supplements? 6 June 18, 2015
Pediatric AVM questions... PLEASE HELP! 16 June 15, 2015
Any info relating to 10 y/o boy w/rupture, still in ICU after 3 weeks 35 June 4, 2015
My son's odd headaches 20 December 14, 2014
My son Dominic who has epilepsy due to complications from VOGM featured in story 3 December 11, 2014
Frightened for my Daughter 15 September 16, 2014
Calling all parents 28 July 3, 2014
Mom of AVM at loss 12 May 28, 2014
A mother's fear for her son 6 April 1, 2014
My son's story 48 March 17, 2014
My son 4 March 6, 2014
My son 26 years old avm rupture 6 January 28, 2014
Undecided what treatment option is best for my 7 year old son with Grade 4 AVM (5.6cm) 31 January 20, 2014
Newly found AVM - 13 yo son 14 October 14, 2013
Son had Cerbellar AVM rupture in four spots, repaired by embolization, June of 2012. Still struggling with balance -- cannot walk without help 32 October 6, 2013
My daughter 3 August 11, 2013
9 yr old left frontal lobe - can anyone share side effects proton long term? 14 June 19, 2013
Update on my son 6 June 9, 2013
My 30 year old son just diagnosed with an AVM 62 May 9, 2013
Our Son Riley 56 January 27, 2013
Update on my son Kevin 34 January 27, 2013
Daughter Brain AVM Lots of questions! 9 November 2, 2012
Looking for information on use of Avastin for my 5 yr. old son w/multiple avm's 4 September 28, 2012
The loss of my wife 36 September 2, 2012