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AVM Survivors Network

Parents and Care Givers of AVM Patients


Topic Replies Activity
The couple at the flea market sunday near Adamstown, Pa

It was Really nice meeting the two of you, I didn’t even think to get your names(sorry).One of you had mentioned being on this support group. If you would like to talk more I would love to, Been thinking about your love…

2 August 13, 2019
About the Parents and Care Givers of AVM Patients category 1 March 9, 2017
Anger issues 9 August 17, 2019
Radiosurgery 3 August 16, 2019
Worn down 15 August 10, 2019
Revisiting a nightmare 3 July 24, 2019
Son's MRI next week, 1.5 yrs after CyberKnife at Stanford 17 July 18, 2019
AVM 8 year old daughter 3 April 26, 2019
18 year old son just diagnosed 3 April 19, 2019
Where to stay 4 April 13, 2019
AVM (recanalization) regrowth, 7 yo child 8 March 25, 2019
Between a rock and a hard place with hell in between 48 March 19, 2019
Thank you 6 February 14, 2019
Sleep/wake 4 January 29, 2019
Daughter diagnosed with avm 18 January 25, 2019
What do parents want to know about AVM 10 January 22, 2019
14 month old 3 December 9, 2018
How to help my family to understand 10 November 18, 2018
My son is AVM free! 21 November 1, 2018
About Anthony 1 August 3, 2018
Hubby has surgery Monday and I am getting scared 7 July 26, 2018
Tests for brothers and sisters for avm 3 July 15, 2018
6 months after Gamma knife side affects 1 June 12, 2018
My daughter is a week post op and in so much pain 35 May 26, 2018
9 year old son AVM ruptured 21 May 16, 2018
Looking to meet survivors Fresno, CA 4 May 13, 2018
Needed some advice... but now she has passed away 10 May 10, 2018
No speech/ written communication techniques? 10 May 7, 2018
Questions to ask the Dr about craniotomy and choice between 9 April 17, 2018
Motivating My Son -- Help Please! 6 March 3, 2018