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Comment by cy on September 12, 2013 at 3:08pm

i am praying for your little boy and your whole family.
beautiful video

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so many surgeries...

Posted by desertlily83 on December 24, 2014 at 10:38am 24 Comments

Just thinking about all that my baby girl has to go threw first a drain on both sides of her head, after finding out about her avm, she's 10, then a monitor catheter in her head to monitore ICP pressures, then the Cranitomy surgery to remove part…

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