Hi there, since my craniotomy following the haemorrhage of my AVM in the brain, November 2010, I am getting crackling/clicking sounds coming from the area of my head where the op was performed. Has anyone else experienced this? If so have you been given an explanation for it?
Hi Yvonne. I heard clicking noises for the first 24 hours after surgery. The surgeon had no explanation. I always wondered if I could hear the skull kind of meshing together again. I know the noise was driving me batty. Hope you mystery sound goes away soon!
It's the bone-flap settling - a very strange 'sound' (and sometimes sensation) only you can hear and feel!
It especially freaked me out after I had my 1st crani in 1988 and I 'heard" this loud clicking in my head while the nurse was elevating the head of my hospital bed. When I finally mentioned this to her, she laughed and said it was my bone-flap settlilng. She said that some people even felt it 'click' in their fingers....it's 'normal' and in time will go away... :)
My husband wanted me to clarify my response. It was the resident who was not know what the noise was. Dr Barrow told my husband it was the bone flap. Okay…it was a long time ago…LOL.
Thank you all for your replies. At least now I don't feel like I'm going mad! I have a post op appointment on the 28th of this month so hopefully I will get some answers. I don't mind the clicking only at night when I am trying to sleep. Thank you all again
xxxxYvonnexxxxx
I got the clicking sound when I walked and took a step but only about 2-3 months after my surgery. I guess it was the last hurrah before the bone flap healed up…??
hi yvonne just wondering what did your doctor said about the crackling noise im having about the same noise thanks!
I had noises coming from my bone flap for at least a year following my craniotomy. I would hear it while chewing, while walking, etc., but it did not happen all the time. I would tell people about it and they were convinced it was just a figment of my imagination until one day I told my wife to listen while I lightly pressed on the side of my head. After that, she stopped doubting me and was also quite creeped out. Fortunately, it eventually solidified enough that the bolts and disks stopped shifting, but it did make for an annoying year.
Thanks jake I’m waiting for my xoctor to call hope is normal
Hello Yvonne,
I hope this info helps. I had AVM removed from my right temporal area April 2009. About a year later and still up to now I hear clicking sounds from my head. Neuro Surgeon told me it is one of the titanium plates clicking away. He said nothing to worry about and pay it no mind. It goes away when you do not mind it.
I felt the same way, without surgery. Knock knock, rattle. these were epileptic seizures. with the appropriate medication (levitirazepam) it stopped. avm is on the right temporo-parietal and clatter that was left to listen.
Yes I’ve recently had AVM removal surgery and I have some strange noises in my head, like pulsating squealching noises. Very weird
Yes I’ve recently had AVM surgery (a non bleed AVM) lots of squelching noises and clicking noises , very weird.
Hello, I also had this and it was really pronounced when I was tired…it’s two years on and it seems to have gone but I had it mostly when I was feeling frazzled.
Ok did you struggle to sleep after coming out of hospital! My body clock is out of sync and struggle to sleep now I’m home and out of hospital. ?
Thanks
Maxine x
YES! I was tired but wired, I was also not completely convinced I was out
of hospital even when I was. for some time I suspected I intensely
dreaming myself home. It was very odd. I believed for a good deal of time
I was actually in a coma and dreaming my life and recovery.
Wow what a journey you had , I think I had a blood transfusion, hence the tiredness 
. Here’s to a speedy recovery .
Xx
SWISH SWISH SWISH - similar to an ocean in my head. and clicks and felt like extra weird if i walk too fast. I his was in 2003 - BEST DOCTOR IN THE WORLD DR. GARY STEINBERG AT STANFORD , IN CA. god bless
Elaine,
Welcome to the forum. I would be most grateful if you could tell me about the weirdness when you walked too fast. I have this and don’t know what it is. My interventional radiologist has just discharged me, saying hes obliterated my fistula.
Was the walking weirdness before sone surgery or radiation or embolization and do you know what fixed it? Or do you still have the weirdness?
Thanks,
Richard
Laura,
Are you taking about squishing sounds or clicking? Thanks, Richard