Anyone experinencing extrimty AVM. I was diagnosed with a rite foot avm 3 years ago would love to chat with others with simiular avms all though i think we are all super srtrong no matter tge location 
My AVM is on my left leg thigh. Likely a second procedure to stop blood flow in early April.
I did a little gathering together of extremity AVM stories into the AVM in Extremities group a week or two ago. I have to say extremity AVM seems to be quite rare, so there are not many active members I have seen recently.
@Bamberoo and @Dize have been contributing recently, so you may all have some things to share.
Hope this helps,
Richard