Martin
Thank you for your reassurance it has taken off the edge of my worries and I do trust my doctors even though I have only met them once. Don’t worry I will make sure you are kept in the loop for the latest updates.
Thanks!
Ellie
Lulu
I have been to the hospital and met with a few specialist nurses and also some neurosurgeons and soon I will be having tests to see the extent of it and how easy it is to remove or block up. I have spoken to them also about what different procedures I can have and I will know which one is the best for me very soon.
I’m glad that yours isn’t causing you may inconvenience and I hope you are well.
Ellie
John
Yes I am very fortunate to know before hand. It must have been horrible for you to experience it being problematic as mine hasn’t has a negative affect on me so far.
Merry Christmas and thank you for responding
Ellie
Seenie
I’m unlucky to have it however I’m lucky that we have found it.
My parents have contacted the school about it, including my head teacher and also the school nurse so that is reassuring.
I’m very glad I have found this site and also all of you to talk to as it is helpful to talk to people who have been through it.
As for me, I play hockey with my friends a few times a week which is a good way to exersice. Also I like to read and paint however I’m not very good at maths and science. I have been a very big fan of Harry Potter since I was young and by the time I was 9 I had read all 7 of the books.
I hope you are well
Thank you for responding.
Ellie
Ah, that is great, Ellie! Having the head teacher and the school nurse onside is a great way to start.
It sounds like you are a very busy person. That’s great. I am very impressed that you read all of the HP books by the age of nine! I’ll bet you were under the covers with a torch reading at night when you should have been asleep. 
We are really glad that you are here, even if it’s a shame that you had a reason to come looking for us!
Seenie
Hi Elmarner,
Firstly, I reckon it’s lucky your AVM has been found. A lot of people are not so lucky… This website is great for support and it took me a while to find it. My Frontal AVM was treated with glue and then radiotherapy. You’ll be under some great Dr’s and nurse’s who will all be looking out for you. I live in Preston in Lancashire. Talk to as many people as you can and learn as much as you can. Feel free to ask me anything, if I can be of any help at just ask. Warm regards Alex
Elmarner,
If this is any comfort to know, when I was diagnose, at 18 years old, almost 40 years ago, I could not even found ANYONE who had an AVM, because the computer world back then was ancient compared to now. This AVM community is so FAB, because no one can connect so well than with each other AVM survivors, right?
Good luck to your future, and the medical world knows so much more about AVM things!
Lisa A. Stuckel
Ellie
Hope you are well. For some reason, I have it in my mind that you were having a visit to hospital last week. Did you get any better understanding of next steps?
We’ve broken up for Christmas in Leicestershire already, so I hope you have, too!
Very best wishes for Christmas!
Richard
Richard
Yes I had an angiogram last friday, I have not found out the results of that yet but it didn’t not go to badly. I have been in and out of A+E since however because I have been losing my vision temporarily and frequently being sick however the doctors think it is just my reaction to the anaesthetic
Merry Christmas
Ellie
Alex and Lisa,
I am not too worried anymore, I have come to terms with it and I understand it a lot better now
Thank you for your kind words,
Ellie
Ellie,
Well, good luck! We’re all here to help each other along.
Very best wishes for Christmas to you and yours,
Richard