We are thrilled to have this behind us! And thank you for the continued prayers! She was prayed for by so many we truly had such a peace during her procedure! Still do and really feel that she is going to make it through this without any major issues! Although I was praying that your son’s AVM would be completely gone, it is shrinking and that is wonderful! Will pray with you through this 6 month period! I hate to wish time away but I’m ready to fast forward through this next 6 months! Keep in touch and I will do the same!
1 Like
Our son just had is 2 year angiogram after gamma knife. It has been obliterated! We are so very thankful to Dr. Welch at UTSW in Dallas. He has not had any issues at all since gamma knife was done in February 2016. I hope your daughter is doing well, Celeste.
2 Likes
Pallison that is great to hear!! Happy New Year!!
Richard
Oh my goodness! Praise God! I am thrilled for you all! You can now breathe a HUGE sigh of relief and get back to a normal life!! This is the best news and such an inspiration for us! Thank you for sharing! I just can’t stop smiling!
Paige hasn’t had any side effects from the radiation at this point. She continues to have small seizures as she has throughout this ordeal but we are anxiously awaiting the 6 month mark to see if she will start having any deficits. I feel in my heart she is going to be ok! Thanks for asking about her! Will keep you posted on that progress!
Again, I am so thankful that your son is completely healed!!
Pallison, that is such wonderful news to hear! A long road but I am so happy to hear your sons AVM is finally obliterated without issues with the Gamma Knife. Couldn’t start the new year any better 
Best wishes,
Corrine
1 Like
Clanier, Really good to hear Paige has responded well to her treatmemt and Im glad to hear your keeping up positive thoughts too. I hope as the GK works over time soon she will have relief from her seizures also.
My AVM is in a differant location of my brain (left occipital lobe) however I am also 23. So if your daughter wanted someone to talk to who’s a similar age and a fellow AVMer, welcome to PM me about it 
We are all sending out our positive energy and wishes to you, your daughter and family.
Best wishes and Happy New Year!
Corrine
1 Like
Hi There. Our daughter was 8 when diagnosed and is now 14. We have been working with our Nuerosurgeon and Nuerologist during that time and the conclusion we have come to is that whilst she can enjoy a full life we balance teh risks of surgery. We have decided to keep going. Her AVM is deep and large 6cm so risks of damage increase.
I recall diagnosis and we went through hell in jumping to worst case scenario at every new bit of information. If I had to make a decision in the early days I am sure it would have been through fear and panic rather than a reasoned balanced view of risks. Work with teh Neuro team and weigh up the risks.
Hi Pallison. We have a 10 year old son who has a small AVM on the right side of his brain. We are researching gamma knife vs. proton therapy in Boston. I was wondering if you had researched this as well or heard of it? I’m also so thankful to be reading about your experience and a good outcome as we start this journey.