Hi all. Im new in here. I live in turkey and 33 years old. First, Sorry for my language mistakes.
I realize my issue with AVM when im 30. First in middle of my hand, swelling appear. I search for surgeon, the only doctor i can find here, (in Turkey doctors dont know about this yet) he said “we have to do embolization”. My first surge was on March this year. And then nothings changed, my pain and weakness was worse than before. And i give up to do surge. Because it feels like its gonna be worst.
As a patient, ım so afraid of lose my hand or sensetivity. First i want you to suggest me a few doctors if you can. Second; i want to ask:
-can i keep on go to gym?
-should i use my hand less?
-that compression bandages and ice pressure really works? Or these are useless?
-anyone of you have a hand loss?
-they say AVM leads heart issues or any worse problems?
-what is the worst scene i can face?
Thank you all, sorry if its to long. Because first time i found these kind of forum. Really thanks. All get well soon.