had my ct and mri w/contrast and they said to him it looks like calsification,,but he wasnt 100% sure unless i had and aniogram done,,,soory about the spelling,,,....however..i have to have another mri tomorrow at the same place that said i had avms in the first place.so while im there i will mention it to them to see if they see the one on my pons,,and if so to mention it in my report...so help me if they say yes they see one there and its had grown..im am sending the results to my nerologist with the 4 eports that have said and conflicted them...with what he has..and then speck to them as to if i will have the aniogram done...im so confused,,and how can to mri not see them and say calsification and yet have two mri that say they r there and have grown...wtheck is wrong with the doctors that read these...any sugestions would be appreciated on haveing this test doena nd what its like for them and opinions on what i wrote..thanks
Comment
I dont know Ben its so weird..I think its not the machines its who reads them...so i will let you know tomrrow if they see anything agian on my mri since this was the first place that saw them..
Comment by Ben Mrl on February 13, 2013 at 1:49pm This has me puzzled. I never had that trouble with MRI's. I did however have that problem with cat scans. For some reason they could never see my AVM on a cat. And... that's when it measured 5 cm. Go figure.
oh how can one mri and doctor read them and say yes you have three and two have grown and then two diff..places i havemri at say a white spot and one say calsification but not 100 & sure but even so they wont mess wuth anything on my pons...this is crazy,,i am about ready to forget it all and i will if this mri tomorrow shows no avm on my brainstem cause its of my neck and that how they seen the fiirst one the first time...then i might concider the aniogram ,but want anyone who has experiance to let me know what its like for them..thanks
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 4 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
© 2013 Created by BensFriends.org

You need to be a member of AVMSurvivors.org to add comments!
Join AVMSurvivors.org