had my ct and mri w/contrast and they said to him it looks like calsification,,but he wasnt 100% sure unless i had and aniogram done,,,soory about the spelling,,,....however..i have to have another mri tomorrow at the same place that said i had avms in the first place.so while im there i will mention it to them to see if they see the one on my pons,,and if so to mention it in my report...so help me if they say yes they see one there and its had grown..im am sending the results to my nerologist with the 4 eports that have said and conflicted them...with what he has..and then speck to them as to if i will have the aniogram done...im so confused,,and how can to mri not see them and say calsification and yet have two mri that say they r there and have grown...wtheck is wrong with the doctors that read these...any sugestions would be appreciated on haveing this test doena nd what its like for them and opinions on what i wrote..thanks

Views: 33

Comment

You need to be a member of AVMSurvivors.org to add comments!

Join AVMSurvivors.org

Comment by shania52 on February 13, 2013 at 2:31pm

I dont know Ben its so weird..I think its not the machines its who reads them...so i will let you know tomrrow if they see anything agian on my mri since this was the first place that saw them..

Comment by Ben Mrl on February 13, 2013 at 1:49pm

This has me puzzled. I never had that trouble with MRI's. I did however have that problem with cat scans. For some reason they could never see my AVM on a cat. And... that's when it measured 5 cm. Go figure.

Comment by shania52 on February 13, 2013 at 12:35pm

oh how can one mri and doctor read them and say yes you have three and two have grown and then two diff..places i havemri at say a white spot and one say calsification but not 100 & sure but even so they wont mess wuth anything on my pons...this is crazy,,i am about ready to forget it all and i will if this mri tomorrow shows no avm on my brainstem cause its of my neck and that how they seen the fiirst one the first time...then i might concider the aniogram ,but want anyone who has experiance to let me know what its like for them..thanks

PLEASE LIKE US ON FACEBOOK AND FOLLOW BENS FRIENDS ON TUMBLR AND TWITTER AND PINTEREST

To Support AVMSurvivors.org, Click an Ad. Or Two.

Our Newest Communities

Join the Ben's Friends Mailing List

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

confusion as symptoms mount... time for new dr?

Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments

Since last may, the symptoms that sent me to the neurologist in the first place are getting worse. July 11th, the MRI with Contrast found my avm, left frontal lobe. The neurologist I see right now is not concerned about the avm, and only wants to… Continue

HHT Diagnosis or Suspected

Posted by Fish on May 10, 2013 at 3:25pm 1 Comment

My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…

Continue

Dreams... changing

Posted by Michael on May 2, 2013 at 3:14am 5 Comments

Hello there,

how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…

Continue

One year since my bleed, more or less

Posted by tdz103m on May 2, 2013 at 5:34am 4 Comments

I don't know exactly when it happened because I slept through May 1, 2012. All day.

May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…

Continue

Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast

Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments

After being featured on a number of publications,…

Continue

Events

© 2013   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service