Comment

Comment by Connie T on July 28, 2009 at 10:50pm

Cecelia - It has been 3-1/2 years since I had the proton beam. I love how positive you are! If you read my new blog, you will see i'm feeling more hopeful too!

Comment by Cecelia Dougherty on July 26, 2009 at 8:22am

Connie:
How long has it been since your treatment? Sometimes there is a long waiting period with treatments (such as Gamma Knife) I don't know aq whole lot about your treatment, but please
be patient, you might just need to wait longer. I had Gamma Knife in 1999, 2003, and 2006 and am still waiting for obliteration day, hopefully some day it will happen for all of us in this AVM boat!

Comment by Connie T on July 22, 2009 at 2:19pm

Thank you, my dear friends, for all your words of encouragement.

Love. Connie

Comment by Karen Robertson on July 22, 2009 at 11:42am

Connie and Brain, I am sorry to hear about this situation. They also wanted me to go for a second radiation treatment. I choose not too have a second treatment. The treatments come with risks also, like the angiogram, dyes, med's after. I am still here; going stong since apr 1996. I have a stong believe in God, and natures ability to heal this body. I am suporting my bodies ablity to heal, with a simple diet, and trying to avoiding food allergies and chemicals. Except like a fool I still smoke. Personally it helps me to feel some sence of control, ability to help my self. I meditate, work on personal emotional growth. There is always things we can do, there are many things we do not yet understand about this human body and its ability to heal. So hang in there my friends and have faith, just a little can go a long way. I think this way; if I can limit the work my body has to do, it will have more time and energy to work on the AVM. Hugs from Karen

Comment by Grace O'Brien on July 22, 2009 at 10:05am

Sorry to hear that Connie...stay positive it will all work out! See this as just being sent to the right doctor that will help 100%. My thoughts are with you.

Comment by Deb C. on July 22, 2009 at 8:31am

Hi Connie,

My heart breaks for you. Hope there is an answer for you and everyone in the same boat in the near future.

Debbie

Comment by Nea's Mom on July 22, 2009 at 7:32am

I'm sorry. I wish you had better news. I'll add my hugs and hopes for a future solution for you.

Comment by Marla Kohmetscher on July 22, 2009 at 1:15am

So sorry..... It must be hard to go through all that and not have it help. I'm with Alicia though--someone out there will find the right treatment for you and it will work. You'll be in my prayers tonight.

Comment by Alicia on July 21, 2009 at 11:24pm

connie,
never give up...there will be someone out there with the right treatment for you i am so sorry the radiation didnt work...i am asking that archangel michael...the angel of courage...be by your side to give you the strength and courage you need to continue this journey...you are in my prayers...keep searching..it will happen ..lots of love and hugs to ya xxx

Comment by Connie T on July 21, 2009 at 10:44pm

Brian - your appointment sounds perfect! I would love to have a sit down with all the specialists at one time! Good luck!

By the way, you are right...a refund would be nice! lol

Caroline and Joy - Don't worry, I'm not giving up hope!

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