this was originally a comment I posted on Connie K.'s wall, but I realized it's a big question and I wanted to seek more opinions.
I don't know much about my options for treatment, as I actually haven't seen a doctor. I sent my CT reports and was referred to the interventional neuroradiologist for the angiogram, which they scheduled over the phone. No one has actually looked at my head/neck - it kind of seems like they want to do the angiogram before they even meet me. Looking around this site, it seems like the angiogram is pretty standard. Most people have had one, regardless of being embolized or not. No one at this doctor's office has mentioned to me that I might be emobolized during the angiogram - in fact, they said they were only 'signed up' to use the procedure room for an hour (so I doubt they could emoblize). I'm not usually a proponent of western medicine (I have a number of autoimmune diseases I treat holistically), and so I'm not one to proceed with something just because the doctor recommended it, but I am sort of surprised that many on this site are discouraging in regards to the angiogram. Yes it's invasive, but it's also fairly routine, and it is a diagnostic procedure. I cannot get myself too worked up over this angiogram, or else how can I face the treatment ahead? I've read CTs are not as definite as angiograms, so perhaps they suspect the issue is greater than the CT can detect? Do you recommend I push for another CT or an MRI before agreeing to the angiogram? I just don't want to have an MRI and then be told they need more info and have to do the angiogram anyway. My CT was done over a year ago.

Views: 48

Tags: angiogram

Comment

You need to be a member of AVMSurvivors.org to add comments!

Join AVMSurvivors.org


Moderator
Comment by dancermom on February 20, 2013 at 9:17pm

sounds fine. they might stabilize your head somehow, so there is no movement.

Comment by carsonokeeffe on February 20, 2013 at 9:08pm

thank you everyone. actually I've been told that they only give anesthetia to people who really want it or those with heart conditions, so I'm going to be given a sedative instead & local anesthetic at the puncture site. does that sound right?


Moderator
Comment by dancermom on February 20, 2013 at 8:59pm

To avoid confusion for you, Carson, patients with brain AVMs are generally awake during angiograms; patients with peripheral avms are generally under general anesthesia.

Comment by Ben Mrl on February 20, 2013 at 8:40pm

I've had 4 angios and I never had a problem with them. As a matter of fact - I don't mind them at all. The pictures that they take, are much more clearer and accurate than what MRI's are. CT scans never showed much for me. Many times it didn't even pick up my AVM. Which was 3 1/2 cm then.

For the angio's they give you a local anesthesia.

Ben

Comment by Tim on February 19, 2013 at 2:15pm
I don't know your story or where your avm is but I had one in my right temporal lobe and I had 3 angiograms and the embolized 3 times decreasing the size of my avm and when it was time for my craniotimy there was no hemoraging or bleeding! So I am a big supporter of getting angiorgrams, it's a bery simple procedure and doesn't take long, it isn't fun but it helped a lot

Moderator
Comment by dancermom on February 19, 2013 at 12:27pm

The CT from a year ago is useful only for comparison now; new tests will definitely be needed before treatment. You do not need to be fearful of the angiogram; I cannot remember anyone here ever mentioning a problem after angiogram, and most members here have had at least one. I would not recommend pushing for an extra CT, as we need to be careful to limit our exposure to radiation as much as possible. Angiograms are already fairly radiation-intensive.

Here are some folks to contact, so you are not just hearing from Connie and me: Debra, Monica Longood, Keith R, Jaz, Bonnie, and Kim R.

PLEASE LIKE US ON FACEBOOK AND FOLLOW BENS FRIENDS ON TUMBLR AND TWITTER AND PINTEREST

To Support AVMSurvivors.org, Click an Ad. Or Two.

Our Newest Communities

Join the Ben's Friends Mailing List

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

confusion as symptoms mount... time for new dr?

Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments

Since last may, the symptoms that sent me to the neurologist in the first place are getting worse. July 11th, the MRI with Contrast found my avm, left frontal lobe. The neurologist I see right now is not concerned about the avm, and only wants to… Continue

HHT Diagnosis or Suspected

Posted by Fish on May 10, 2013 at 3:25pm 1 Comment

My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…

Continue

Dreams... changing

Posted by Michael on May 2, 2013 at 3:14am 5 Comments

Hello there,

how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…

Continue

One year since my bleed, more or less

Posted by tdz103m on May 2, 2013 at 5:34am 5 Comments

I don't know exactly when it happened because I slept through May 1, 2012. All day.

May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…

Continue

Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast

Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments

After being featured on a number of publications,…

Continue

© 2013   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service